Realizing Hope: The Voice of a People (Day 9)

Today is a beautiful and extraordinary day. My heart is contented in quieted peace as any words that dare escape me only want to pour themselves out through grateful tears. I get to share the screen with over a dozen miraculous human beings from all over the world whom together we share something beautifully rare. We all have a love of singing, but that’s not the rarity that connects us. We all share a common bond of genetic mutation - one that has shaped our lives in the form of a diagnosis called cystic fibrosis. One that has brought us together for this rare and beautiful moment. One that has allowed us to come together to be a part of the sINgSPIRE Virtual Choir.

Seeing these incredible women across the screen is truly life-giving. They are what feed my soul and give me strength - knowing that I am never alone in this journey with CF. That there truly are individuals who understand this complicated disease and the life it demands of us. We each have such diverse stories, but it’s such a breathtakingly beautiful thing when we come together as one voice. 

Today, after three months of working on our latest project, I get to share with these wonderful singers the culmination of our latest project in its finalized masterpiece. You see, because it is recommended that two individuals with cystic fibrosis not share a space due to risk and outcomes of cross-infection, it makes it impossible for us all to come together as one in the same space to share our voices. These women are defying a diagnosis. Their individual voices are a miraculous thing, but when they join them together the passion and strength behind the sound is more powerful than CF ever will be. And it’s because of each of them, I never stop fighting for more beautiful breaths for all of us. It’s because of each of them my hope lies rooted in simply having the strength, voice, and breath to share many more beautiful moments with each of them. My greatest hope, however? It’s that all of them will have the opportunity to live in the realization of such hope. 

Please join us on the Breathe Bravely Facebook page Tuesday, January 14 at 8pm CST for the world premiere of “We Give Voice”, or find it on our website www.breathebravely.org/wegivevoice

Here’s a teaser into our latest project: 

Visit the Breathe Bravely Facebook page and help us share the word about our upcoming project! Our voices are a powerful thing in and of themselves, but when we join them together to give voice to cystic fibrosis they are a beautiful and unstoppable force of hope.