Tuesday, April 1, 2014
Today is the day! The day I openly share with each of you my wonderful life and how I am grateful for each breath, literally.
For twenty seven years I have hidden a portion of myself away behind the closed doors of doctors appointments, treatments, hospital stays, and fear. Fear. The fear that the world might see the imperfections and struggles behind the facade I have so carefully tried to paint. I have always wanted to represent poise, positivity, and strength: never wanting to elude to the battle going on beneath all the paint.
Today is the day. I am removing a layer of paint and showing the world what I AM, not what I am not. Today I show the world how grateful I am for each breath, each beautiful person I know and love, and each opportunity life has to offer.
Here goes nothing. My big secret? I have Cystic Fibrosis.
Ok, it's not my only one, but it's the one that wakes me up in the morning!
What's that? - nothing I can't handle!
"Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that:
• clogs the lungs and leads to life-threatening lung infections; and
• obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.
In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. The current median life expectancy is 37.4 years."
This blog is for all of you who so selflessly fight for me, for each breath. This blog is being started in response to the great people in my life who are raising awareness and money for CF. Thank you will never be enough. Love to you all.
Today is the day. What's your paint job trying to hide?